April 21, 2016
February CDAC Agenda (with minutes in italics)
February 5, 2016
Introductions (in case we have some new participants)
The Arc Policy Conference – Sacramento March 2016
Cathleen is hoping to attend. Heather might make it. Kelly will be there, and she hopes to meet with any NorCal friends who can make time during that conference time.
III. Update on Ds Info (Small)
Working with Bonilla (D) committee – health; interested in sponsoring. Alameda and Contra Costa Counties. Hospital association – working on it. California Dept of Public Health (working on updating materials) – awesome work, Cathleen!!
IV. Employment discussion
a) California is an Employment First state already.
Do we need legislation or creative ways to ensure implementation?
Invite Olivia Raynor to discuss employment. (Cindy will contact.)
Bev Foster – Next Step program (April suggested – Kelly can invite)
solutions – non-minimum wage
help small business/funding source
refocus current funding
Rising Tide (increase employment – Autistic community)
Heather Scott mentioned two important things to learn more about:
1. Down Syndrome Works Program – initiative to make people with Ds more employable; specific training opportunities;
2.A Touch of Understanding – schools – workshop (3 hr) – business training –
What laws are already in place?
V. Dreams (all)
There are many Ds organizations in the state. How do we give all a voice and an opportunity to be part of the discussion?
How do we include more self-advocates in this conversation? Cathleen agreed to reach out to DSCBA staff to ask about interest in collaborating.
I would love to have a face to face meeting – even if it’s NorCal, Central Cal and SoCal in three places at once. Cindy made a great suggestion. Kelly will let her plan that.
Legislative policy – moving forward to community work situations Cindy is drafting (see below).
VI. Non-legislative needs?
a) serve on various statewide work groups and task forces (on post-secondary, UDL, law enforcement training)
b) testify at school board and city council hearings on priorities
c) Participate in workshops and webinars on key issues
d) reach out to local affiliates to keep them informed of policy issues (draft articles for newsletters, post on listservs, etc)
e) attend the Buddy Walk on Washington
Kelly is going to get a little survey feedback about who is already doing what in their areas.
VII. Next steps
Cindy Liu will draft a policy shifting funding sub minimum wage.
Shelley Herron suggested reaching our to Rep. Cathy McMorris Rodgers (R-WA). We will let her know some of us will be in town in April.
We will reach out to Rep. Susan Davis (D-CA). A former Social Worker, we hope she continues to be an incredible ally on the Hill.
December 2015 (no meeting)
September 24, 2015
- Discussion and approval of Vision Statement
- Update on Ds Information Bill (Cathleen Small)
- Post-secondary Options: What does this mean to you? Brainstorming session (Kelly and everyone)
- Research and data analysis projects (CUNY Disability Studies Grad Certificate)
- Interest/willingness to request funds for Zoom and CDAC logo?
- Requests for future agenda items/Questions/Other (all)
ABLE Phone calls Governor Brown
Info Bill – dinner
Medical professionals in Bay Area
California Down Syndrome Advocacy Coalition
August 27, 2015
Recap on August 29, 2015
Shelley Herron, Kelly Kulzer-Reyes, Jawanda Mast, Brad Pitzele, Cathleen Small, Carolyn Tellalian
Review notes from last meeting
Kelly reviewed last meeting briefly. Jawanda introduced herself. She is the new NDSS Grassroots Manager.
Review of Vision Statement
Overview of edits of the MDSC vision statement.
Carolyn described the Self-determination portion. Kelly added to it. Both Carolyn and Kelly serve on regional center (CVRC and KRC) SDACs (Self-determination Advisory Committees).
Carolyn requested outreach materials from Cathleen. Cathleen will send to Kelly; Kelly will distribute.
Brad discussed rationale for the data transparency piece.
Shelley would like an updated copy of the vision statement to share with her board.
Review of CDAC Priorities
Kelly asked for input on the survey. Conversation inadvertently cut short. (Sorry, everyone!)
Ds Information Bill (Cathleen Small)
Cathleen has drafted a California Ds Info Bill. Discussed the importance of this remaining an information bill, not a debate over reproductive rights. Shelley would like to present this to her San Diego board, as well.
Next meeting: Doodle to be sent: September 24, 2015, 12:00 pm or September 25, 2015, 3:00 pm
Thank you for all you do!
Notes from July 2015
Introductions: Beth Foraker (teacher in UC Davis), Joyce Clark (nurse), Kelly-Kulzer-Reyes, Shelley (Board of DS, VP of Family Outreach), Cathleen (DS of Bay Area) Medical Outreach Coordinator, April Fox (Bakersfield),
Advocacy name: CDAN (Ca Ds Advocacy Network) / DANC (Ds Advocacy Network of CA)
Agreed upon CDAC – California Down syndrome Advocacy Coalition
1). Inclusion: Beth – incorporated individuals with DS into gen ed (inclusion) within Catholic private school. Presented National Catholic Board on Full Inclusion. Have website, FB, Instagram, & Twitter pages.
2). Ambassador Program: NDSS having voice for DS in CA “quick” ABLE Act.
3). Post secondary bill.
4). 8-9 solid state programs, similar to MDAC (State of Mass).
5). Meet on a monthly basis for conference call & Google groups.
6). Branding a name for GAC – gov’t affairs committee.
7). Mission and vision statements.